-.MoSA.-

Making Jewellery!

I’ve been fairly unwell for the last few days. As I’m feeling better right now, thought I’d invest this energy into something creative. I’ll post my finished products as and when! If you happy to like any of them, feel free to buy them. Proceeds will be donated to LupusUK.

• 20 Dec 2015
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My goals for upcoming year

I’ve never had a diary. But I feel after the year I’ve had, maybe it might be time to start one.

I’m 25 years old, and was diagnosed with a condition called Systematic Lupus Erythematosus, in 2010. It’s never been a huge issue until the last year or so.

The SLE decided to flare for almost an entire year. My kidneys became comprised briefly (reversible damage fortunately), began seeing/hearing things, having seizures, my hair fell out, joints and muscles stopped working properly, slipped into a deep depression and my eyes are deteriorating.

As Lupus is an autoimmune disease, I’ve also picked up other illnesses in the same spectrum, (these are called cross over illnesses) Fibromyalgia, Rheumatoid arthritis, Sjögren’s, Coeliacs and Psoriasis. These are all also autoimmune, and unfortunately like most people with Lupus, you tend to collect them as your illness progresses. The term for this is MCTD (Multi-Connective Tissue Disease)

As Lupus affects every system in the body, it’s difficult to both diagnose and treat. Especially if your rheumatologist is as rubbish as mine. The central nervous issues, in my case, cause psychosis, Depression and Seizures, yet the medication for those causes new issues, which also need to be medicated. At any one time I’m taking roughly 36 pills a day. And my case is only a moderately severe example of the illness.

I’m hoping as, not being able to work, that drawing on the days I can hold a pencil will help me raise money and awareness.

This next year I’ll document each flare, and hopefully help everyone have a greater understanding of Autoimmune disease.

Thank you for reading.

• 14 Dec 2015